A great way to sum up life on dialysis Helen. I particularly understand the fourth verse and the frustration that you feel when people say how well you look. I’ve mentioned this before but I had a personnel manager who always said I looked well and I heard from other people that he seriously thought there was nothing wrong with me. Actually there’s a great variation on the saying ‘Don’t judge me until you’ve walked a mile in my shoes’ in Harper Lee’s brilliant book To Kill a Mockingbird. It is spoken by defence lawyer Atticus Finch:
“You never really understand a person until you consider things from his point of view… Until you climb into his skin and walk around in it.”
Thanks for sharing your poem Helen.
Thanks Rob. That is awful that your personnel manager didn’t believe you were ill. Last year when my daughter & I went on holiday & I had to be wheeled to the front of the queue by a rep. people were looking at me as though to say ‘Why are you in a wheelchair?’ Even worse the rep. at the check in desk wanted to know what was wrong with me & rudely pointed at the swabs on my AVF. Great quote.
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