The travelling kidney… Gold standard, super duper insurance… Check Drugs squashed into their smallest transportable form…Check Clinic letters crumpled in my hand luggage…Check What could go wrong?? Believe it or not, getting sick abroad is practically my forte. I’m so good at it I can usually manage a hospitalisation in every country I visit.[…]
“The reasonable man adapts himself to the world: the unreasonable one persists in trying to adapt the world to himself. Therefore, all progress depends on the unreasonable man.” — George Bernard Shaw I’ve never considered myself an unreasonable man. In fact at times I feel cursed that I invariably see both sides of an argument[…]
An update from Dr Janet Hegarty and Dr Grahame Wood of Salford Royal Foundation Trust covering the PKD Clinic, Tolvaptan and the launch of a PKD patient Befriending project run by the PKD Charity UK. For details please follow the link below. PKD update: PKD Clinic, Tolvaptan and ‘Befriending’ Event
Dr Janet Hegarty of Salford Royal Foundation Trust warns of a recent increase in the number of kidney patients admitted to hospital with ‘flu and reminds everyone to get their ‘flu jab as soon as possible. Dear all This is a quick note to let you know that there has been an increase in[…]
It’s almost two years since I wrote a blog called Parental Dilemma in which I posed the question in relation to a genetic disorder “would you test your child or would ignorance be bliss?” The genetic disorder in question was Autosomal Dominant Polycystic Kidney Disease (ADPKD) and it caused the complete failure of my kidneys[…]
I sometimes struggle for ideas for my blogs and often find that reading the blogs of others sparks an idea in my head. This blog is based on comments I made to Anne Cooper (@anniecoops) about her recent musings on Information Governance and her assertion that the processes involved in capturing personal data aren’t always[…]
The weekend didn’t get off to a good start so it shouldn’t have come as a surprise that by Sunday afternoon my mood was heading steadily downwards. We were supposed to be travelling to the north-east to visit my step mother-in-law in her care home but the snow that greeted us on Saturday morning put[…]
A few months ago I had finished a consultation with one of the patients in clinic, when he raised something, almost as his ‘hand was on the door handle’. He brought up the fact that his GP had told him a few years back that he wasn’t suitable for Viagra as a kidney patient. I[…]
In January of this year I wrote a blog on NHS England’s proposal to repatriate the prescription of immuno-suppression medication to renal centres. You can read it here. I thought it was about time to post an update and have chosen to do it via a video .
We are a team of researchers who are interested in the safe use of medicines. We would like to find out how medicines are supplied to patients and how patients use the medicines they are given. Would you be willing to take part in a group discussion to share your experiences of getting and using[…]