Blog from a CaMKIN member, Shirley and her CaMKIN experience. I first heard of “CaMKIN” through a mutual friend so I requested to join the group, which led me to attending the Coffee and Cake meet up on 29.06.19 at Café Lucaya in Liverpool. I attended the group event and was really happy to meet[…]
DNA Editing: Future therapy for genetic conditions? It can’t have escaped your notice that in the past few days the latest development in DNA editing has featured heavily in the media as news emerged of scientists from the USA and South Korea successfully removing a piece of faulty DNA from an embryo. Not untypically, the[…]
100,000 Genomes Project With thanks to Jackie Evans, Mel Kershaw and Emma Wolfenden, a few words on signing up for the 100,000 Genomes project… I’ve taken part in several research studies over the years, the first being a comparative study of Ciclosporin and Sirolimus to which I enrolled on the day of my kidney transplant[…]
A message from Professor Kalra about becoming a Patient Research Ambassador The Comprehensive Research Network (CRN) is trying to encourage people to sign up to be patient research ambassadors in Greater Manchester. The National Institute of Health Research (NIHR) is committed to raising awareness and involving more people in research and ensuring research is designed[…]
Recently I’ve noticed in some other renal support groups that home haemodialysis (HHD) patients state they are wearing gloves. The home environment is different from a clinical setting and I began to question why these patients were wearing gloves. Firstly let us look at the reasons clinicians wear gloves: Rationale for using medical gloves: Medical[…]
Professor Phil Kalra of Salford Royal and CKD patient Michael Lomax in a series of videos taking about kidney disease and kidney research. I’m involved with a few research projects and echo Michael’s comments about it giving you a greater understanding of the disease but I’d also emphasise that, in my case, it has also[…]
Researchers at Manchester University are running a study to improve how CKD patients view and use their lab results online. Initially the study is looking for patients from Salford Royal or Manchester Royal who have been transplanted for at least one year. Checkout the poster below for details. There are links below the poster for[…]
Alport Syndrome Information Day My name is Rachel Lennon and I am a Paediatric Kidney doctor based at the Children’s Hospital in Manchester On Saturday 21st November we hosted the 4th UK Alport Syndrome Information Day in Manchester. The event was organised by the charity Alport UK and was a very successful day. Alport Syndrome[…]
October 15th, 2003 is a date I celebrate with my family every year, it isn’t my birthday but to me it felt like a rebirth. It was the day I received my kidney transplant. It was also the day I enlisted in my first research study. The details of the research escape me although I[…]
Greater Manchester Kidney Information Network (GMKIN) seeks patient involvement from across Greater Manchester in setting priorities and refining kidney research in Salford and Manchester Do you want to influence kidney research in Greater Manchester? Are you passionate about patients and their families having a voice within their healthcare service? Improving care for patients is at[…]