GMKIN has made new friends. If you’d like to connect with them visit their blogs from the links below and don’t forget to post comments on their web-pages. Comments are a great way of supporting them:
Our first GMKIN Friend is the “Paradoxical Patient” who describes themself as “a restless soul, an aspiring novelist, poor poet, and paradoxical patient with a lifelong, life-threatening condition. I live in London and am never far away from an e-gadget (or i-gadget).
I inherited ADPKD – autosomal dominant polycystic kidney disease – from my dad, who inherited it from his mum. Apart from ADPKD, I consider myself to be one of the healthiest people on the planet And therein lies the paradox.” The Paradoxical Patient
Holly is a Young Adult kidney patient from New Zealand who now lives in the north of England and Preston is her renal centre. You can find her on Twitter @kiwiholly. She is a regular blogger on her all aspects of her life with kidney disease and has an infectious postive attitude. mykintsugilife.com
Lisa Barker is a former member of the GMKIN Facebook group and has her own blog too. She is an aHUS sufferer who recently underwent a live donor transplant with the aid of the drug Eculizumab. She writes openly about her life with a chronic condition, both the ups and the downs! – http://livelifelisa.over-blog.com/
Lorraine Pooley, better known as Purple Fairy Chick, is an ADPKD patient who underwent a living kidney transplant from her sister. She remains an active campaigner for organ donation, fistula protection and helps renal patients everywhere. https://purplechickchallenge.wordpress.com/
Gail-Rae is a member of the GMKIN Facebook group and a prolific blogger covering many aspects of life with chronic kidney disease. “What is it and how did I get it? Early Stage Chronic Kidney Disease” – http://gailrae.wordpress.com/
Last Wednesday I had the privilege to ‘sit in’ on the the Committee Meeting of HOPE KPA.
The hard work these people put in to HELP other Renal Patients is incredible.
I would urge more people to join HOPE KPA and volunteer their help where they are
able. Above all support YOUR KPA!
TONY .’.
i was at that meeting and agree with Tony they do fantastic work and it will
be a privilege to help when ever possible , i am looking forward to the next meeting
and hopefully get to meet the group better
Ann